The Issue:
When thinking about planning for end of life decisions,
people face highly personal and often difficult decisions.
If you have terminal cancer and you know you will die
soon, do you want heroic measures taken to extend your
life as long as possible? If you are in a car accident
and slip into a coma in which you might live for a long
time with food and water, do you wish to be kept alive?
Particularly following the Terri Schiavo matter, the importance
of making one's opinion known on these decisions is imperative.
Regardless of how you would make these decisions, what
almost everybody does agree on is that they want their
personal wishes followed. Few people want these decisions
made in a court under emergency circumstances by judges.
The Law:
If you are conscious and have the capacity to understand
and make decisions, you have the right under the law to
fully direct your medical care including choosing what
medical treatment you will receive. If, however, you become
unconscious or lose the capacity to make such decisions,
the job of directing your care will fall to others.
The law provides a means for you to make your wishes
known regarding medical treatment in the event you become
unable to make decisions yourself. The law also provides
a means for you to let the people caring for you know
whether or not life sustaining treatment should be administered
under certain circumstances. In California, the two principle
means by which a your intentions can be expressed are
through a Living Will (Directive to Physicians) or through
a Durable Power of Attorney for Health Care.
Living Wills and Durable Powers of Attorney:
A Living Will (Directive to Physicians) is a document
which simply states your desires regarding treatment to
be followed when you are unable to direct your own medical
care.
A Durable Power of Attorney for Health Care is a document
which names a trusted person, called an agent, to make
health care decisions on your behalf if you cannot do
so yourself. The agent must follow the wishes you have
expressed in your Durable Power of Attorney for Health
Care document and as you have otherwise made known to
your agent. The most important issue in choosing an agent
is selecting a person who you know will follow your wishes.
The person to best serve as your agent may or may not
be the closest person to you. Ultimately, you are looking
for a person who will do what you have asked them to do.
A Durable Power of Attorney for Health Care allows more
flexibility than a Living Will (Directive to Physicians)
because your agent can make decisions taking into account
the circumstances at the time a decision needs to be made.
A Directive to Physicians lacks this flexibility but,
on the other hand, does not need to rely on an agent.
Often a Durable Power of Attorney for Health Care and
a Directive to Physicians are combined to allow your wishes
to be clearly stated on some issues and to allow your
agent to have flexibility on other issues.
End of Life Decisions:
It is important to think carefully about what provisions
you want to be included in your Directive to Physicians
or Durable Power of Attorney for Health Care. It helps
to think of these decisions in several categories:
The Default Position - All Measures Taken to
Sustain Your Life. First, absent any direction,
doctors will take all measures to sustain your life within
generally accepted medical standards. Is this what you
want? If so, your wishes should be clearly expressed in
either a Directive to Physicians or a Durable Power of
Attorney for Health Care which directs that you want your
life prolonged as long as possible within the limits of
generally accepted health care standards and directs that
your health care providers and others involved in your
care provide treatment accordingly.
(1) Imminent Death. If you are diagnosed
with a terminal illness and you are going to die within
a short period of time, do you want your life sustained?
This circumstance is different from losing consciousness
or being in a "vegetative state." You know you
are going to die. Food and water alone will not sustain
your life. Your quality of life may be very high up to
the time of your death or it may be very difficult. The
question is, if you know that your will die soon, do you
want measures taken to resuscitate and prolong your life
as your death becomes imminent? If you do not, then your
wishes should be clearly expressed directing that you
do not want your life to be prolonged if you have an incurable
and irreversible condition that will result in your death
within a relatively short time.
(2) Prolonged Unconsciousness. If you
become unconscious and your doctors believe that you will
remain that way, do you want to be fed, to receive water,
and to receive life sustaining medical treatment? This
is the Terri Schiavo situation. In this situation, you
could live for a long period of time. You are not necessarily
going to die quickly. Should food, water, and life sustaining
medical treatment be provided for you? If you would not
wish to be kept alive under these circumstances, you should
make your wishes known by including them in a Directive
to Physicians or Durable Power of Attorney for Health
Care which directs that you do not want your life to be
prolonged if you become unconscious and, to a reasonable
degree of medical certainty, you will not regain consciousness.
(3) Some Flexibility. The above statements
are absolutes and are made when you execute your Directive
to Physicians or Durable Power of Attorney for Health
Care. You cannot fully predict the circumstances of your
life at the time you may become unconscious. You should
carefully consider whether there are any circumstances
under which you might wish to have your life sustained
should you become unconscious and the medical opinion
is that you will remain in that state. Many people choose
to give the flexibility to their agent to evaluate the
circumstances at the time the decision needs to be made.
In this case you should state that you do not want your
life prolonged if the likely risks and burdens of treatment
would outweigh the expected benefits given your personal
values as expressed to your agent. This option allows
important circumstances such as your age, state of health,
prognosis, personal and religious values to be considered
by your agent at the time the decision is made.
(4) Pain Management. Finally, whether
you want life sustaining treatment provided or not, many
people wish to provide for the alleviation of pain, even
if it hastens their death. If this is what you want, you
need to direct that treatment for alleviation of pain
or discomfort can be provided, even if it hastens your
death.